FNDHopeCANADA Volunteer 2022-23
REVIEWS: FiNDing Hope
Patrick Price,
Ask A Book Editor
"There’s so much I respected in FiNDing Hope—its rawness, its hope, the visceral depictions of a body out of control, the honest moments of despair, insights inched toward, and then backsliding out of fear and lack of being seen. It’s a tapestry of grief and self-realization that refuses to play by a strictly linear memoir playbook. Anyone facing a FND diagnosis, or really anyone enduring chronic health issues or a medical mystery, will find solace, empathy, insight, and hope in Jocelyn's words."
Jon Stone,
Professor of Neurology, University of Edinburgh, UK . Secretary of the FND society and creator of neurosymptoms.org
"The voices of people with FND have long been silent. Jocelyn Bystrom's account of experiencing seizures and movement disorder as part of the condition will resonabte with others who experienced diagnostic delay and disbelief from others. Her story also gives hope to those wondering if improvement from FND is possible and reminds us that there are many different paths to change. "
Jon Stone, Professor of Neurology, University of Edinburgh, UK . Secretary of the FND society and creator of neurosymptoms.org
Dr. JJ. Sidhu,
Psychiatry, (SIU)
Vancouver General Hospital
“Finding Hope is a fantastic read. Like any skilled guide, Jocelyn Bystrom expertly brings us along to experience the ups and downs of what it is like to live with a condition that transcends the perceived space between mental and physical health. This experience can be incredibly isolating and invalidating for individuals trying to navigate their own lives, as well as medical systems that are better set up for more overly simplified origins of illness. Finding Hope advances this discussion, and it should bring hope to those who find themselves in similar circumstances.”
🤩 fndhope.org - Is a virtual treasure trove of reliable information, rich resources and opportunities to connect with FND practitioners and the FND community. Newly diagnosed in 2021, I phond the site easy to navigate and extremely reassuring to review and share information about FND
ARE YOU FND AWARE❓
"There’s so much I respected in FiNDing Hope—its rawness, its hope, the visceral depictions of a body out of control, the honest moments of despair, insights inched toward, and then backsliding out of fear and lack of being seen. It’s a tapestry of grief and self-realization that refuses to play by a strictly linear memoir playbook. Anyone facing a FND diagnosis, or really anyone enduring chronic health issues or a medical mystery, will find solace, empathy, insight, and hope in Jocelyn's words."
FND or (Functional Neurological Disorder) is a neurological disorder.
"It is when the brain does not send and receive messages accurately.” (FNDHope.org)
(Link for more depth and complexity to fndhope.org)
That's the simplified Twitter type definition. Want to know more❓
Check out this page for answers to FAQ at FNDHOPE.org
What exactly is FND ❓
Trust the Experts💯
***For reliable and science-based answers to your questions about #FND after a new diagnosis go to either of the websites that were highly-recommended at the Seizures Investigation Unit at VGH by my team of neurologists, when I was diagnosed Feb, 2021.
fndhope.org or neurosymptoms.org
Are you an FND Advocate❓
Connect here with others keen to share reliable research & FND content.
Share your story to raise awareness and help others who may be struggling in silence with #FND
You can be brave❣️ 🥰 I was, and YOU can too💯.
#strongertogether
Jocelyn, 2022
Tom Plender pens the continuation of his journey and discusses the latest research and treatment options for FND.