FNDHopeCANADA Volunteer 2022-23

REVIEWS: FiNDing Hope

Patrick Price,
Ask A Book Editor
"There’s so much I respected in FiNDing Hope—its rawness, its hope, the visceral depictions of a body out of control, the honest moments of despair, insights inched toward, and then backsliding out of fear and lack of being seen. It’s a tapestry of grief and self-realization that refuses to play by a strictly linear memoir playbook. Anyone facing a FND diagnosis, or really anyone enduring chronic health issues or a medical mystery, will find solace, empathy, insight, and hope in Jocelyn's words."

Jon Stone,
Professor of Neurology, University of Edinburgh, UK . Secretary of the FND society and creator of neurosymptoms.org
"The voices of people with FND have long been silent. Jocelyn Bystrom's account of experiencing seizures and movement disorder as part of the condition will resonabte with others who experienced diagnostic delay and disbelief from others. Her story also gives hope to those wondering if improvement from FND is possible and reminds us that there are many different paths to change. "
Jon Stone, Professor of Neurology, University of Edinburgh, UK . Secretary of the FND society and creator of neurosymptoms.org

Dr. JJ. Sidhu,
Psychiatry, (SIU)
Vancouver General Hospital
“Finding Hope is a fantastic read. Like any skilled guide, Jocelyn Bystrom expertly brings us along to experience the ups and downs of what it is like to live with a condition that transcends the perceived space between mental and physical health. This experience can be incredibly isolating and invalidating for individuals trying to navigate their own lives, as well as medical systems that are better set up for more overly simplified origins of illness. Finding Hope advances this discussion, and it should bring hope to those who find themselves in similar circumstances.”
Ava Speaks out about Suicide Prevention
I’m delighted and privileged to introduce 17 year old, Ava.
This articulate, wise, youthful storyteller has created an incredibly insightful video. I'm honoured that she’s given me permission to share her creative artistry and pertinent, timely message reaching out to anyone struggling with tough stuff on the topic of suicide. Thank you, Ava! Together, she and I share a strong passion and desire to advocate for #mentalhealth support for ALL. , which Ava articulates powerfully.
“We belong as the main character in our own story and not every story needs to be written alone.”
(Ava, 2021)
***Whether aged 17 or 57, from birth to death we must share our stories and support one another.
#StrongerTogether.

Ava's Story
"Be the main character in your story, not every story needs to be written alone."
Jocelyn’s Tips for Self-Advocacy / Peer Support
Regarding Suicide Prevention
***All views expressed here are my own. Please always consult your doctor and/or trusted individuals that support your mental health and well-being.
Are you struggling in silence, having thoughts about, or planning to kill yourself?
Let's create a brave space to talk about suicide.
Helpful questions:
-
How are you doing?
-
Are you thinking about killing yourself?
-
What does that look like for you? (Try to find out what's happening that makes them feel like that?)
-
Can we have a chat about it?
-
Do you want to be dead, or would you like something in your life to change?
-
May I share something about my personal experience? (If they say no, respect their no.)
-
How's that working for you?
-
Do you want to explore other things?
-
Do you want to do something about it?
-
Do you know how to get the help you need or can I help you find support and resources, you can reach out to?
Helpful actions:
-
Break the Silence,
-
Create brave spaces: Provide unbiased support and come alongside your friend with curiosity to listen and explore what they are telling you and support with informed choice and resources.
-
Listen to what isn't said,
-
Support self-determination and choice!
-
Trust and cultivate feedback, share power (communicate with authenticity and transparency) to ensure accountability, and be human (have the courage to be vulnerable).
-
Pull away from understanding the diagnosis.
-
Remember its not about fix and solve, instead listen with curiosity!
-
See the person holistically; although you're experiencing different paths, and separate identities.
-
Be willing to sit in the discomfort with empathy, and connection.
-
Let them be the voice of the discussion.
Helpful comments:
-
Don't say: "I understand." Instead, say: I'm curious, and I care, which offer relatability, hope and recoverability.
-
I've never experienced that. What's that like for you?
-
I really want to be with you and explore what's going on for you with curiosity.
-
Do you want to do something about it?
-
I come without an agenda to be with you.
-
I know others who have been able to get through this.
-
Can I stay with you while you call the suicide hotline? Encourage them to seek supports they choose.
-
Can I stay with your and call the suicide hotline for you? Go alongside as they seek supports.
-
I need to tell you, I have to to report this, if you don't. ***Tell them, be really honest and open, before your report. Give them the opportunity for self-determination and to seek support for themselves.
Resources
Canadian Suicide Prevention Service 1-833-456-4566
Kids Help Line B.C. 1-800-668-6868
United States: National Suicide & Crisis Hotline - 1-800-273-8255
#mentalhealthawareness #mentalhealthsupport #mentalhealthrecovery
